International Journal of Celiac Disease
ISSN (Print): 2334-3427 ISSN (Online): 2334-3486 Website: Editor-in-chief: Samasca Gabriel
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International Journal of Celiac Disease. 2017, 5(3), 115-124
DOI: 10.12691/ijcd-5-3-4
Open AccessArticle

Living with Celiac Disease: Norms of Femininity and the Complications of Everyday Life

Ethel Kautto1, , Cecilia Olsson2, Anneli Ivarsson3, Phil Lyon2, Agneta Hörnell2 and Lena Alex4

1Department of Food and Nutrition and Umeå Center for Gender Studies, Umeå University, Sweden

2Department of Food and Nutrition, Umeå University, Sweden

3Department of Public Health and Clinical Medicine, Epidemiology and Global Health, Umeå University, Sweden

4Department of Nursing, Umeå University, Sweden

Pub. Date: August 08, 2017

Cite this paper:
Ethel Kautto, Cecilia Olsson, Anneli Ivarsson, Phil Lyon, Agneta Hörnell and Lena Alex. Living with Celiac Disease: Norms of Femininity and the Complications of Everyday Life. International Journal of Celiac Disease. 2017; 5(3):115-124. doi: 10.12691/ijcd-5-3-4


Women with celiac disease are often described as being exposed to negative emotions and experiences related to the treatment of celiac disease, the gluten-free diet. To explore the daily consequences of diagnosis and their daily experiences of living with celiac disease, interviews were conducted with seven Swedish young women who had been diagnosed with celiac disease by screening in early adolescence. The semi-structured interview transcripts were content analysed using a gender perspective. The analysis showed that these young women`s daily experiences were coloured by the conjunction of their dietary treatment, their social relationships, and social norms. This means that recurrent food situations often clash with the normative constructions of femininity and social norms of eating with an adverse effect on dietary compliance.

adherence/compliance gluten-free diet gender young adults

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