Self-care Management and Self-efficacy among Adult Patients with Sickle Cell Disease

Elham Abduallah Al Nagshabandi¹ and Iman Abdallah Mohammed Abdulmutalib^2,

¹Medical-Surgical Nursing Department, Nursing Faculty, King Abdulaziz University, Jeddah, KSA

²Medical-Surgical Nursing Department, Nursing Faculty, Ain Shams University, Cairo, Egypt

Cite this paper:
Elham Abduallah Al Nagshabandi and Iman Abdallah Mohammed Abdulmutalib. Self-care Management and Self-efficacy among Adult Patients with Sickle Cell Disease. American Journal of Nursing Research. 2019; 7(1):51-57. doi: 10.12691/ajnr-7-1-7

Abstract

An important specific management for patients with chronic disease is self-care. Patients who are diagnosed with sickle cell disease have home-care as a contribution to enduring their pain and therefore restraining a pain crisis. An improved interpretation of self-care can benefit the team of health care by preparing the sickle cell patients with required resources and abilities essential to aid in managing their disease. The aim of the study was to assess self-care management and self-efficacy among adult patients with sickle cell disease. A descriptive design was used in this study. The study was conducted at King Abdulaziz University Hospital in Jeddah, data collected from outpatients’ clinic, medical wards and day care unit. A purposeful sample of 50 adult patients diagnosed with sickle cell disease male or female. Data was collected through the main two tools; Tool I: consists of two parts: Part 1. Structured interview questionnaire to assess patients’ sociodemographic and clinical data; Part 2: Self-care management used to measure perceived self-care ability. Tool II: Sickle Cell Self-Efficacy Scale used to assess the perceived ability of patients with SCD to manage their disease. The study results showed that 58% were female and 42% male, their mean age was 36.75 years. There was statistically significant difference found regarding self-efficacy in relation to age, marital status, level of education, and patient years with sickle cell disease. However, there are statistically significant difference found regarding self-care management in relation to the level of education, living situation and patient years with sickle cell disease. It was concluded that there was a positive differed statistically correlation between self-efficacy and self-care management among sickle cell patients. It was a recommendation to developing patient education program aimed to successful self-care comprised in the disease controlling process. Undertake additional research efforts to plan interventions to achieve health outcomes of young adults’ patients.

Keywords:
self-care management self-efficacy sickle cell disease

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References:

[1]	Cordeiro, R. C., Ferreira, S.L. & Santos, C.C. (2014). Experiences of illness among individuals with sickle cell anemia and self-care strategies. Acta Paul Enferm, 27(6), 499-504.
[2]	Mulumba, L. L., and Wilson, L. (2015). Sickle cell disease among children in Africa: An integrative Literature review and global recommendations. International Journal of Africa Nursing Sciences. 3, 56-64.
[3]	Poku, B., Caress, A., Kirk, S. (2018). Adolescents’ experiences of living with sickle cell disease. International Journal of Nursing Studies, 80, 20-28.
[4]	Piel, F. B., Hay, S. I., Gupta, S., Weatherall, D.J., & Williams, T.N. (2013). Global Burden of Sickle Cell Anaemia in Children under Five, 2010-2050 Modelling Based on Demographics, Excess Mortality, and Interventions. PLOS Medicine, 10(7): e1001484.
[5]	Asnani, M.R., Quimby, K. R., Bennett, N. R., & Francis, D.K. (2016). Interventions for patients and caregivers to improve knowledge of sickle cell disease and recognition of its related complications. Cochrane Database of Systematic Reviews, (10). Art. No.: CD011175.
[6]	Matthie, N. (2013). Sickle Cell Disease: The Role of Self-Care Management. A dissertation Ph.D. College of Nursing University of South Florida
[7]	Matthie, N., Jenerette, C., & McMillan, S. (2015). The Role of Self-Care in Sickle Cell Disease. Journal of Pain Management Nursing, 16(3), 257-266.
[8]	Mahdi, N., Al-Ola, K., Khalek, N., Almawi, Y. (2010). Depression, anxiety, and stress comorbidities in sickle cell anemia patients with vasoocclusive crisis. Journal of Pediatric Hematology/Oncology, 32(5): 345-99.
[9]	Adegbola, A. (2011). Spirituality, self-efficacy and quality of life among adults with sickle cell disease. Southern Online Journal of Nursing Research, 11(1): pii 5.
[10]	Jenerette, C., and Phillips, R. (2006). An examination of differences in intra-personal resources, self-care management, and health outcomes in older and younger adults with sickle cell disease. South Journal of Nursing Research, 3(7):1-24.
[11]	Jenerette, C., Murdaugh, C. (2008). Testing the Theory of Self-care Management for sickle cell disease. Research in Nursing & Health, 31(4): 355-69.
[12]	Edwards, R., Telfair, J., Cecil, H., Lenoci, J. (2000). Reliability and validity of a self-efficacy instrument specific to sickle cell disease. Behavior Research and Therapy, 38(9), 951-963.
[13]	Asnani, R., Fraser, R., Lewis, A., Reid, E. (2010). Depression and loneliness in Jamaicans with sickle cell disease. BMC Psychiatry, 10: 40.
[14]	Stephen, N., Nden, N., Gusen, N. J., Kumzhi, P. R., Gaknung, B., Auta, D. A. Bulndi, L. B., Mbursa, C., Kumari, V.P., & Nanvyat, N. (2018). Prevalence of sickle cell disease among children attending plateau specialist hospital, Jos, Nigeria. ACTA Medical International, 5(1), 20-23.
[15]	Laurence, B., George, D., & Woods, D. (2006). Association between elevated depressive symptoms and clinical disease severity in African American adults with sickle cell disease. Journal of the National Medical Association, 98(3): 365-369.
[16]	Felder-Puig, R., Baumgartner, M., Topf, R., Gadner, H., & Formann, A.K. (2008). Health-related quality of life in Austrian elementary school children. Med Care, 46(4), 432-9.
[17]	Boyd, J.H., Macklin, E.A., Strunk, R.C., & DeBaun, M.R. (2007). Asthma is associated with increased mortality in individuals with sickle cell anemia. Hematologic; 92(8): 1115-8.
[18]	Tanabe, P., Porter, J., Creary, M., Kirkwood, E., Miller, S., Ahmed-Williams, E., & Hassell, K. (2010). A Qualitative Analysis of Best Self-management Practices: Sickle Cell Disease. Journal of the National Medical Association, 102 (11), 1033-1041.
[19]	Molter, B., Abrahamson, K. (2015). Self-Efficacy, Transition, and Patient Outcomes in the Sickle Cell Disease Population. American Society for Pain Management Nursing, 16(3), 418-424.
[20]	Imhonde, H., Ndom, E., Ehon, A. (2013). Social-Support, Self-Esteem and Depression as Determinants of Quality of Life among Sickle Cell Patients. IFE PsychologIA, 21 (1), 101.
[21]	Edwards, R., Telfair, J., Cecil, H., Lenoci, J. (2001). Self-efficacy as a predictor of adult adjustment to sickle cell disease: One-year outcomes. Psychosomatic Medicine, 63(5), 850-858.
[22]	Frei, A., Svarin, A., Steurer-Stey, C., Puhan, M. (2009). Self-efficacy instruments for patients with chronic diseases suffer from methodological limitations – a systematic review. Health and Quality of Life Outcomes, 7:1-10.
[23]	Jenerette, C., Brewer, C., & Leak, A. (2011). Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease. Nursing Research and Practice, Article ID 270594, 1-5.