Elham Abduallah Al Nagshabandi¹, Iman Abdallah Mohammed Abdulmutalib^2,

An important specific management for patients with chronic disease is self-care. Patients who are diagnosed with sickle cell disease have home-care as a contribution to enduring their pain and therefore restraining a pain crisis. An improved interpretation of self-care can benefit the team of health care by preparing the sickle cell patients with required resources and abilities essential to aid in managing their disease. The aim of the study was to assess self-care management and self-efficacy among adult patients with sickle cell disease. A descriptive design was used in this study. The study was conducted at King Abdulaziz University Hospital in Jeddah, data collected from outpatients’ clinic, medical wards and day care unit. A purposeful sample of 50 adult patients diagnosed with sickle cell disease male or female. Data was collected through the main two tools; Tool I: consists of two parts: Part 1. Structured interview questionnaire to assess patients’ sociodemographic and clinical data; Part 2: Self-care management used to measure perceived self-care ability. Tool II: Sickle Cell Self-Efficacy Scale used to assess the perceived ability of patients with SCD to manage their disease. The study results showed that 58% were female and 42% male, their mean age was 36.75 years. There was statistically significant difference found regarding self-efficacy in relation to age, marital status, level of education, and patient years with sickle cell disease. However, there are statistically significant difference found regarding self-care management in relation to the level of education, living situation and patient years with sickle cell disease. It was concluded that there was a positive differed statistically correlation between self-efficacy and self-care management among sickle cell patients. It was a recommendation to developing patient education program aimed to successful self-care comprised in the disease controlling process. Undertake additional research efforts to plan interventions to achieve health outcomes of young adults’ patients.

self-care management, self-efficacy, sickle cell disease