American Journal of Nursing Research
ISSN (Print): 2378-5594 ISSN (Online): 2378-5586 Website: http://www.sciepub.com/journal/ajnr Editor-in-chief: Apply for this position
Open Access
Journal Browser
Go
American Journal of Nursing Research. 2018, 6(6), 500-506
DOI: 10.12691/ajnr-6-6-18
Open AccessArticle

Comparative Study for Pattern of Social Support among Systemic Lupus Erythematous Patients' at Out-patient Clinics, Assiut University Hospital

Shimaa Elwardany Aly1, , Fayza Mohammed Mohammed1, Asmaa Sayed Abd-Almageed2 and Ghada Hassan Ahmed3

1Lecture of Community Health Nursing, Faculty of Nursing, Assiut University, Egypt

2Lecture of Medical Surgical Nursing, Faculty of Nursing, Assiut University, Egypt

3Lecture of Internal Medicine, Faculty of Medicine, Assiut University, Egypt

Pub. Date: October 31, 2018

Cite this paper:
Shimaa Elwardany Aly, Fayza Mohammed Mohammed, Asmaa Sayed Abd-Almageed and Ghada Hassan Ahmed. Comparative Study for Pattern of Social Support among Systemic Lupus Erythematous Patients' at Out-patient Clinics, Assiut University Hospital. American Journal of Nursing Research. 2018; 6(6):500-506. doi: 10.12691/ajnr-6-6-18

Abstract

People with Systemic Lupus Erythematous need for social support more than others due to Systemic Lupus Erythematous' often caused severe and unpredictable symptoms; also can be affected multiple system. The study aimed to determine the pattern of Social support among Systemic Lupus Erythematous patients; also to identify the risk factors among Systemic Lupus Erythematous patients at out-patient clinics, Assiut university hospital. Patients and methods: The study was conducted in Rheumatology clinic at Assiut university hospital. The total sample size was (104); total coverage technique used in this study. Tools: Two tools were used, first tool: A structured interview questionnaire sheet which included two parts; demographic data and questions regarding risk factors and the second tool; it included Social Support Assessment scale. Results: more than half (55.8%) of patients had high level of social support after disease compared to 39.4% of them had moderate and high level of social support before disease also, Sunlight exposure was the most risk factors among Systemic Lupus Erythematous patients. Conclusion: there was statistically significant differences between total score of social support before and after disease (P value=0.001*). Recommendation: Health education about rheumatologic services for community to early detection, diagnosis and treatment.

Keywords:
Pattern- Social support Systemic Lupus Erythematous

Creative CommonsThis work is licensed under a Creative Commons Attribution 4.0 International License. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/

References:

[1]  Falvo D., (2013). Medical and Psychosocial Aspects of Chronic Illness and Disability. 5th ed. Sudbury, MA: Jones and Bartlett Publishers.
 
[2]  National Institute of Arthritis and Musculoskeletal and Skin Diseases., (2017). Handout on Health: Systemic Lupus Erythematosus. Available at https://www.niams.nih.gov/health-topics/lupus.
 
[3]  Urowitz M, Gladman D, Ibanez D, Sanchez-Guerrero J, Romero-Diaz J, Gordon C, Bae S, Clarke A, Bernatsky S, Fortin P, Hanly J, Isenberg D, Rahman A, Wallace D, Ginzler E, Petri M, Bruce I, Merrill J, Nived O, Sturfelt G, Dooley M, Alarcon G, Fessler B, Steinsson K, Ramsey-Goldman R, Zoma A, Khamashta M, Manzi S, van Vollenhoven R, Ramos-Casals M, Aranow C, Stoll T,(2014): American College of Rheumatology criteria at inception, and accrual over 5 years in the SLICC inception cohort. Journal of Rheumatology; 41, 875-880.
 
[4]  Robinson, M., Cook, S. S., & Currie, L. M. (2011). Systemic lupus erythematosus: a genetic review for advanced practice nurses. J Am Acad Nurse Pract, 23(12), 629-637.
 
[5]  House S. J. & Road E, (2015). Caring for someone with Lupus, London, Pp: 1: 20. Available at: www.lupusuk.org.uk.
 
[6]  Vélez-Bermúdez M., (2016). The Exploration of Patient-Doctor Relationships, Social Support, and Symptom Invisibility among Women with Lupus: A Qualitative Study, A Thesis Presented in Partial Fulfillment of the Requirements for the Degree Master of Science Approved June 2016 by the Graduate Supervisory Committee: Lupus Foundation of America, Inc. Medications Used to Treat Lupus.
 
[7]  Wallace D., (2012): The Lupus Book: A Guide for Patients and Their Families. 5th ed. New York, NY: Oxford University Press.
 
[8]  Stewart MJ, Langille L. (2000). A framework for social support assessment and intervention in the context of chronic conditions and caregiving. In: Stewart MJ (ed).Chronic Conditions and Caregiving in Canada. Toronto, ON: University of Toronto Press.
 
[9]  Alarc´, G. Calvo-Al´en, G. McGwin Jr. et al., (2006). “Systemic lupus erythematosus in a multiethnic cohort: LUMINA XXXV. Predictive factors of high disease activity over time,” Annals of the Rheumatic Diseases, vol. 65, no. 9, pp. 1168-1174.
 
[10]  Mazzoni, D., & Cicognani, E. (2011). Social support and health in patients with systemic lupus erythematosus: A literature review. Lupus, 20(11), 1117-1125.
 
[11]  Pai Y. (2010): The need for nursing instruction in patients receiving steroid pulse therapy for the treatment of autoimmune diseases and the effect of instruction on patient knowledge. BMC Musculoskeletal Disorders. 11, 217.
 
[12]  Ferenkeh-Koroma, A. (2012). Systemic lupus Erythematosus: nurse and patient education. Nursing Standard, 26(39), 49-57.
 
[13]  Mok C., Kwok R., and Yip P. (2013). Effect of renal disease on the standardized mortality ratio and life expectancy of patients with systemic lupus erythematosus. Journal of ArthritisRheum.; 65: 2154-60.
 
[14]  Centers for Disease Control and Prevention., (2017). Lupus Detailed Fact Sheet. Available at https://www.cdc.gov/lupus/facts/detailed.html.
 
[15]  Sullivan S., (2016). Development of a Systemic Lupus Erythematosus knowledge questionnaire: the relationship among disease proximity, educational exposure and knowledge, Thesis University of Wisconsin-Milwaukee.
 
[16]  Goma S., Mahran D., El-Hakeim E., Ghandour A., Abdelaziz M., Galal M and Gamal R., (2016). Spectrum of Rheumatic Diseases in Egypt is Similar/Different from that in Non-Arabic Countries: An Inpatient Comparison. RRNS, Volume 1, Issue 1. December.
 
[17]  Zimet G., Powells S., Farly G., Werkman S. and Berkoff K., (1990). Psychometric characteristics of the multidimensional scale of perceived social support,” Journal of Personality Assessment, 55: 610-17.
 
[18]  Abd-Elzahar T., (2015). Relationships between hospital related stress and social support among psychiatric patients; thesis submitted for partial fulfillment of the requirement of the master degree, Assiut University, Pp41, 42.
 
[19]  Williams E. Zhang J., Anderson J., Bruner L., and Berhalter L., (2015). Social Support and Self-Reported Stress Levels in a Predominantly African American Sample of Women with Systemic Lupus Erythematosus, Hindawi Publishing Corporation, Autoimmune Diseases, Volume 2015, Article ID 401620, 6 pages.
 
[20]  Morrison S, (2016). Concordance between Need and Receipt of Social Support, Independence and Associations with Well-Being in Women with Systemic Lupus Erythematosus, Thesis submitted in conformity with the requirements for the degree of Master of Science Institute of Health Policy, Management and Evaluation University of Toronto.
 
[21]  Zheng Y., Ye D., Pan H., Li W., Li L., Li J., Li X., Xu J., (2009). Influence of social support on health-related quality of life in patients with systemic lupus erythematosus, clinical rheumatology Volume 28, Issue 3, pp 265-269.
 
[22]  Drenkard, C., Bao, G., Dennis, G., Kan, H. J., Jhingran, P. M., Molta, C. T., & Lim, S. S. (2014): Burden of Systemic Lupus Erythematosus on Employment and Work Productivity: Data From a Large Cohort in the Southeastern United States. Arthritis Care & Research, 66(6), 878-887.
 
[23]  Crosslin K. and Wiginton K., (2011): Sex Differences in Disease Severity Among Patients With Systemic Lupus Erythematosus, Article in Gender Medicine 8(6): 365-71.
 
[24]  Schwartzman-Morris J. and Putterman C, (2012). Gender Differences in the Pathogenesis and Outcome of Lupus and of Lupus Nephritis, Clinical and Developmental Immunology journal, Volume 2012, Article ID 604892, 9 pages.
 
[25]  Sliem H., Tawfik G, Khalil K, Ibrahim N, (2011). Pattern of systemic lupus erythematosus in Egyptian patients: the impact of disease activity on the quality of life, Pan African Medical Journal.; 6: 14.
 
[26]  Morales E, MartõÂnez M, HernaÂndez J, Pinto M, GarcõÂa A, JarquõÂn M, Colombo L. Villaseñor G, Cardiel M, Carrasco G., (2017): Factors Associated with Health-Related Quality of Life in Mexican Lupus Patients Using the LupusQol. PLoS ONE 12(1): e0170209.
 
[27]  Gooden, R. O., (2015): “Association of Social Support and the Well-being of Patients with Systemic Lupus Erythematosus: Analysis of the Georgians Organized Against Lupus (GOAL) Cohort Study.” Thesis, Georgia State University,. http://scholarworks.gsu.edu, Pp: 27&28.
 
[28]  Johns Hopkins Lupus Center, (2017): Lupus-Specific Skin Disease and Skin Problems. Available at https://www.hopkinslupus.org/lupus-info/lupus-affects-body/skin-lupus. Last accessed October 3, 2017.
 
[29]  Sison C., (2016). Cigarette Smoke Exposure Linked to Increased Morbidity in SLE
 
[30]  Bonakdar Z, Jahanshahifar L and Jahanshahifar F., (2011). Vitamin D deficiency and its association with disease activity in new cases of systemic lupus erythematosus. SAGE Journals.
 
[31]  Brooks A., Andrade R., Middleton K., and Wallen G. (2014). Social Support: a Key Variable for Health Promotion and Chronic Disease Management in Hispanic Patients with Rheumatic Diseases, Clinical Medicine Insights. Arthritis and Musculoskeletal Disorders Published online 2014 Mar 16 7: 21-26.